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Claire was just 7 years old when she developed what appeared to be an infected toenail. Upon closer inspection through an x-ray – her toes were actually shrinking because her bones were literally dissolving! No one has been able to determine the cause of Claire’s rare disease, as she is the only known case in the world with these rare symptoms.

Claire is one of the lucky ones – an effective treatment was found through a coordinated burst of research at three universities, under the direction of a Medical Geneticist and co-founder of the Rare Disease Foundation. A high blood pressure medication was innovatively repurposed to stop the condition from progressing and allow Claire’s regenerative bone cells to work unhindered in her body. Today, Claire, with all of her toes, continues her pursuit of athletic excellence!

Claire is just one success story from this newly founded organization. Rare diseases together affect 1 in 12 Canadians and our children carry much of this burden. Research is the only source of knowledge to guide their care and the foundation is the only organization in Canada offering this support and hope to families in need.

RARE FINDS is the 2nd annual fundraising event for the Rare Disease Foundation. This year’s event will be held at District 319 on Saturday, April 9th from 7:00 – 11:00 pm. ∞ Culinary Capers will feature RARE delectable treats for the palette such as Quail Egg with Golden Caviar and Champagne Poached Pear on a Parmesan Crisp ∞ RARE Auction prizes include a 3-bedroom Las Palmas, Mexico penthouse, a Cruisecraft IV Shuswap Lake houseboat rental from Twin Anchors and a priceless opportunity to shadow Ian Walker, Vancouver Sun sports reporter to a Canucks day-of-game morning skate, view the game from the press box & more! ∞ A RARE musical adventure performed by Robert Minden & Carla Hallett features
sounds you cannot hear elsewhere from multi-phonic water phones, the forgotten theremin and blown bottles.

MC for the evening is CTV’s newest news anchor, Tamara Taggart! Tickets are $175 (includes HST) and available online at rarediseasefoundation.org/rarefinds or by calling 866-348-6677. Valet parking is available for $10.

If you are unable to support the event, then we encourage you to purchase your chance to win a RARE FLIGHT PACKAGE that includes two tickets to any of the 71 WestJet destinations valued at over $5000. Tickets are 1 for $20 or 3 for $50 and available online at rarediseasefoundation.org. Draw will be held at the event and winners will be contacted by phone on April 11, 2011 and required to answer a skill testing question.

All proceeds benefit the Rare Disease Foundation. Please help this rare and worthy cause created to help children and their families with hope for their future!

For more information or to set up an interview please call: Sharon at 604-328-2327 or Sharon@askawomanevents.com


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